WebbSanfilippo Research Foundation. Paul and Nancy Burke. www.jlksanfilippofoundation.com. [email protected]. 501 (c) 3 Non-Profit Foundation. Sanfilippo … WebbSanfilippo syndrome was first described in 1963 by Dr. Sylvester Sanfilippo and is considered rare, with an occurrence of 1 in every 70,000 births. It is an autosomal recessive hereditary disorder, which means, both parents …
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